Jono is widely recognised for his work across national healthcare, research, education, and patient advocacy. Alongside co-founding the charity Life After Lary, he speaks regularly to patient groups, hospitals, universities, clinicians, and students, using lived experience to deepen understanding of communication recovery after life‑changing airway surgery.
Built entirely around lived experience, the organisation supports people who have undergone, or are preparing to undergo, a laryngectomy, as well as their families and loved ones.
Cancer treatment is often described as a ‘journey,’ with a clear beginning and end. But for those who have undergone a laryngectomy, the end of treatment is not a return to normality. It is the start of a new, permanent, medically complex life.
Sheffmed are another product supplier who are keen to work closely with us. They were first suggested by Andrew at Severn Health, and the relationship we’ve built with them in such a short time has been excellent. They have made it clear that they want to continue supporting Life After Lary and are looking at increasing their financial contribution in their next budget.
At the Throat Cancer Foundation, we like Jon Organ.
Since my total laryngectomy in February 2022, I have taken on a few challenges that most regular airway folk would call extreme — and that, for a lary, sit somewhere between brave and completely insane. Four Hyrox races. The ATHX Games with a fellow lary. Two London to Brighton off-road MTB rides. An Xterra Duathlon. The X-tron Live virtual fitness event, all the way through to the Finals.
Royal College of Speech and Language Therapists (RCSLT) have released a special podcast, presented by RCSLT president, broadcaster and author Nick Hewer featuring two remarkable individuals Margaret Stoddart, a registered nurse, and Jono Organ, a charity CEO, sharing their experiences of living with voice difficulties.
FOR World Voice Day today, Jon Organ of Life After Lary is sharing his personal story of losing his natural voice to throat cancer and rebuilding a life, identity and purpose after laryngectomy.
Teachers and pupils at London school take part in a mufti (non-uniform) day to support Life After Lary
Life After Lary is proud to announce the appointment of Dr Laura Charlesworth as Ambassador to the charity, strengthening its commitment to improving support and outcomes for people affected by head and neck cancer.
A new postal pen friend support service has been launched to help people preparing for, or recovering from, laryngectomy surgery feel less isolated and more supported during a life-changing period.
We have something truly special to share with our Life After Lary community, a story of generosity, friendship, and the remarkable impact one small support group has had on people living with a laryngectomy.
CHARITY calls for urgent improvements in aftercare and mental health support following total laryngectomy surgery.
LIFE After Lary is calling for a national step change in public understanding of laryngeal cancer and the realities of life after a laryngectomy, as diagnoses continue to rise across the UK.
LIFE After Lary is calling for greater public awareness of HPV related throat cancer, as cases continue to rise sharply across the UK.
Life After Lary has officially become a registered charity dedicated solely to supporting people after a laryngectomy, marking a significant step forward for those whose lives have been permanently changed by laryngeal cancer.
Life After Lary becomes a UK charity dedicated to supporting people after laryngectomy
Read excerpts from our recent newsletter introducing the trustees of the charity.
